So after a week of waiting for a follow up call, we eventually had to give them a nudge and I spoke to my consultant yesterday It does appear that my GBM is back, but in a different place. It appears it’s in a place that’s difficult to get to. So this is a surprise,Continue reading “The road may have got shorter”
Category Archives: Uncategorized
Scanxiety
This blog is going to be a little different as I’m going to update it over the next 36 hours. I’m not going to be sat in the Vale Inn and complete it during one visit as is my usual way, but I’m going to update as I go along. The reason being that tomorrowContinue reading “Scanxiety”
Weird seasons greetings
So how do you celebrate what is in all probability your last Christmas, as your continued existence continues to confound medics. Well go for it I’d guess would be most people’s reaction Well I do also have a family, over doing it can cause them two issues. Firstly it will worry them. Secondly it’s aContinue reading “Weird seasons greetings”
Rolling rolling rolling
I thought I would share a typical weekend, and just how much a diagnosis can change your life A great turnout at the 5K YOUR WAY: MOVE AGAINST CANCER with the most beautiful woman in the world Jen joining us (that’s my best friend and wife) hates the camera and nearly hid. There in whiteContinue reading “Rolling rolling rolling”
33 days, a lot can happen
Hello all. A few weeks back I admitted that I was battling two diseases, my terminal diagnosis for a brain tumour called a glioblastoma stage 4 and since I’d finished working, I’d upped my drinking level to the point of alcoholism. A combination of alcohol, meds and cancer landed me in hospital after a seriesContinue reading “33 days, a lot can happen”
Double the Disease
Well add a third if you count my kidney failure So I’m in hospital In Macclesfield this is my first set of fits since Jan. But when I do I go for it, we had been down to see my Dad who himself was recovering from an eye operation. It’s not just what they’d takenContinue reading “Double the Disease”
Highs, Lows and technology
I’ve a had a couple of weeks off because I’ve had a bug and that’s made me a bit low in mind as well as in body. I’m not very good at being clinically vulnerable. There I’ve said it, so I think nothing of going to an 80s punk festival in Blackpool, I mean it’sContinue reading “Highs, Lows and technology”
#GlioblastomaAwarnessday
So it would be remiss of me on this day not to do a blog. The thing about these awareness days is that most people that get involved are already aware. 3 years ago I couldn’t have told you what a Glioblastoma was, I couldn’t tell you that it was a brain tumour. I couldn’tContinue reading “#GlioblastomaAwarnessday”
Tandem
Hello all , well, either I’m getting old or my latest challenge was knackering. Or as my wife would suggest we’ve had an extra year with brain cancer, So last week Joe the eldest and I went out for a tonne on the tandem https://www.justgiving.com/fundraising/liam-bergin7 We were raising money for brain tumour research… I amContinue reading “Tandem”
Getting back at it
Hello all, I’ve not written for a while, I’ve been a bit low as I often do around event days, like birthdays. I know that I should be happy that I’m still here but it is also a reminder , that with the family around you about what you will miss. This can often leadContinue reading “Getting back at it”