Well add a third if you count my kidney failure So I’m in hospital In Macclesfield this is my first set of fits since Jan. But when I do I go for it, we had been down to see my Dad who himself was recovering from an eye operation. It’s not just what they’d takenContinue reading “Double the Disease”
I’ve a had a couple of weeks off because I’ve had a bug and that’s made me a bit low in mind as well as in body. I’m not very good at being clinically vulnerable. There I’ve said it, so I think nothing of going to an 80s punk festival in Blackpool, I mean it’sContinue reading “Highs, Lows and technology”
So it would be remiss of me on this day not to do a blog. The thing about these awareness days is that most people that get involved are already aware. 3 years ago I couldn’t have told you what a Glioblastoma was, I couldn’t tell you that it was a brain tumour. I couldn’tContinue reading “#GlioblastomaAwarnessday”
Hello all , well, either I’m getting old or my latest challenge was knackering. Or as my wife would suggest we’ve had an extra year with brain cancer, So last week Joe the eldest and I went out for a tonne on the tandem https://www.justgiving.com/fundraising/liam-bergin7 We were raising money for brain tumour research… I amContinue reading “Tandem”
I know I can go on a bit, but with Bike Week 2022 coming up 6-12 of June, I thought I’d hit down a few reasons why the bike has been as much a part of my treatment as all the meds Just a quick note on how I got here. I’d been out forContinue reading “The bike the brain tumour and me”
Hello all, I’ve not written for a while, I’ve been a bit low as I often do around event days, like birthdays. I know that I should be happy that I’m still here but it is also a reminder , that with the family around you about what you will miss. This can often leadContinue reading “Getting back at it”
It’s taken longer than before for me to recover from my last set of fits but I’m feeling I’m getting there, I’ve been out on my bike with Gareth and Anna who were gentle with me and it was great to get out. I’ve got a couple of bike events coming up. Penge CC whomContinue reading “Getting back on track”
I’ve had a confusing few weeks, two people have died who I thought a huge amount of. I met Richard fleetingly and communicated by text and had some DM contact with Tom over the months. Richard was an award winning Scottish journalist and co founder of the cycling podcast, my favourite podcast in the world.Continue reading “In memory of Richard Moore and Tom Parker”
So a full on week. Started with my eldest Joe and I visiting the Brain Tumour Research Centre of excellence at Queen Mary’s London Town. To place some plaques on the wall of hope. Now through you’re generosity we had 9 plaques to place. Each plaques representing £3000 that’s a days research. I chose toContinue reading “Emotional week”
I haven’t blogged for a while, been a bit under the weather with a cold and change of meds. It’s amazing when you’ve got a terminal diagnosis how you can get anxious about the slightest change in your body. So am I wearing glasses now because I have a brain tumour, or because I’m 50Continue reading “Social Community”
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Lovely weekend with a gentle reminder
Sibling love
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I think it’s fair to say we’ve had a bit on since we last met up for pure leisure. Mum died, I got a diagnosis fro a Glioblastoma, that’s without the stresses of being a headteacher (Dom) a Snr social worker (Alexandra) under the present government, but it was Bergin family time
We had a lovely little place in Windermere and managed to coordinate the three arrivals from South London, Dunblane and Bollington, not so easy when one can’t drive it it was just great to be back together, we had the usual sibling issues as youngsters but never anything to big. We’ve been close working with each other living near each over in London. I can’t remember the last cross word that take more than 30mins to sort
The previous week, I’d had a good scan result nice little hole no progress and I went to to the weekend thinking about going skiing next year. Much to My wife’s frustration, just a decent weekend in the outdoors
It needs it for the lakes The views Dom
Great couple of days firstly walking round Grasmere I always like to that when I’m up as it was Lewi my late stepsons favourite walk, there is always something exciting about finding a lake at height even when you can’t see it
Lewi loved the lakes
The 2nd day we did Wasdale to trout beck and back to Ambleside, it’s wasn’t raining it was stair rods
Dom getting Arty I like a glade
So the idea was we got back and I cooked Sunday lunch , I didn’t feel weird but Dom said I had started to be a bit spaced. I went upstairs to get clean and start to cook tea
Before I know it Dominic and Alexandra are lifting me off the floor. I’ve enough experience now to know I’ve no idea what’s happened isn’t unusual. Also enough to to now that I was dry so it was not a deep fit. If you’re ill and male it’s important that occasionally you’re body isn’t in charge. I had a 2nd fit on the ct scan and the bed of wet clothes by your bed isn’t embarrassing it’s a result of your illness. You’ll be looked after
Guess that’s where I fell Another hole
Anyway a huge thanks to the hospital at Lancaster for looking after me
A huge thanks to the Lake District for reminding me that I’m not skiing again. That experience at 200m is somewhat different that 2800m
I can make a hell of what left of my life if I make the right adjustments, but I can’t pretend anymore that I can do both. I’m
I am lucky enough to have friends and family waiting and worries. For that compromise is important
Braintumourbergin 