Well I’ve been a bit over productive on social media and blogging since my diagnosis back in June 2020 and since the return of my Glioblastoma I’m getting emotionally and physically more tired now. This is my last blog and then I will be logging off as I’ve realised it’s creating more anxiety and pressure…
It’s always a concern when they keep you waiting after a scan as normally it’s a whole weeks wait. It’s been about 7 weeks since my last scan showed the return of the Glioblastoma and the look on the face of my oncologist this time just said it’s serious time Liam. Unfortunately it seems to…
Hello I’ve recently been employed by the Red willow, Macclesfield’s best local brewery. For a long time I’ve been unable to get a job due to my illness despite my 40 years of catering experience, and since I was diagnosed with a Glioblastoma in June 2020 I have been amongst the millions of those who…
We are a few weeks into the recurrence of a brain tumour and on chemotherapy again. I’m also back on steroids after my initial surgery back in July 2020. For the first time I can feel a worsening of my cognitive behaviour, I can’t type so I am dictating this to Jen. I am walking…
Well I’m in a weird world now, I know my tumour is back and my professor keeps stressing highly aggressive, because it’s so deep in my brain it’s completely inoperable. So I’m on a new chemotherapy that I only take every 6 weeks Now for someone whose entire life is spent trying to come up…
So after a week of waiting for a follow up call, we eventually had to give them a nudge and I spoke to my consultant yesterday It does appear that my GBM is back, but in a different place. It appears it’s in a place that’s difficult to get to. So this is a surprise,…
This blog is going to be a little different as I’m going to update it over the next 36 hours. I’m not going to be sat in the Vale Inn and complete it during one visit as is my usual way, but I’m going to update as I go along. The reason being that tomorrow…
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Lovely weekend with a gentle reminder
Sibling love
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I think it’s fair to say we’ve had a bit on since we last met up for pure leisure. Mum died, I got a diagnosis fro a Glioblastoma, that’s without the stresses of being a headteacher (Dom) a Snr social worker (Alexandra) under the present government, but it was Bergin family time
We had a lovely little place in Windermere and managed to coordinate the three arrivals from South London, Dunblane and Bollington, not so easy when one can’t drive it it was just great to be back together, we had the usual sibling issues as youngsters but never anything to big. We’ve been close working with each other living near each over in London. I can’t remember the last cross word that take more than 30mins to sort
The previous week, I’d had a good scan result nice little hole no progress and I went to to the weekend thinking about going skiing next year. Much to My wife’s frustration, just a decent weekend in the outdoors
It needs it for the lakes The views Dom
Great couple of days firstly walking round Grasmere I always like to that when I’m up as it was Lewi my late stepsons favourite walk, there is always something exciting about finding a lake at height even when you can’t see it
Lewi loved the lakes
The 2nd day we did Wasdale to trout beck and back to Ambleside, it’s wasn’t raining it was stair rods
Dom getting Arty I like a glade
So the idea was we got back and I cooked Sunday lunch , I didn’t feel weird but Dom said I had started to be a bit spaced. I went upstairs to get clean and start to cook tea
Before I know it Dominic and Alexandra are lifting me off the floor. I’ve enough experience now to know I’ve no idea what’s happened isn’t unusual. Also enough to to now that I was dry so it was not a deep fit. If you’re ill and male it’s important that occasionally you’re body isn’t in charge. I had a 2nd fit on the ct scan and the bed of wet clothes by your bed isn’t embarrassing it’s a result of your illness. You’ll be looked after
Guess that’s where I fell Another hole
Anyway a huge thanks to the hospital at Lancaster for looking after me
A huge thanks to the Lake District for reminding me that I’m not skiing again. That experience at 200m is somewhat different that 2800m
I can make a hell of what left of my life if I make the right adjustments, but I can’t pretend anymore that I can do both. I’m
I am lucky enough to have friends and family waiting and worries. For that compromise is important
Braintumourbergin 