It’s taken longer than before for me to recover from my last set of fits but I’m feeling I’m getting there, I’ve been out on my bike with Gareth and Anna who were gentle with me and it was great to get out. I’ve got a couple of bike events coming up. Penge CC whomContinue reading “Getting back on track”
I’ve had a confusing few weeks, two people have died who I thought a huge amount of. I met Richard fleetingly and communicated by text and had some DM contact with Tom over the months. Richard was an award winning Scottish journalist and co founder of the cycling podcast, my favourite podcast in the world.Continue reading “In memory of Richard Moore and Tom Parker”
So a full on week. Started with my eldest Joe and I visiting the Brain Tumour Research Centre of excellence at Queen Mary’s London Town. To place some plaques on the wall of hope. Now through you’re generosity we had 9 plaques to place. Each plaques representing £3000 that’s a days research. I chose toContinue reading “Emotional week”
I haven’t blogged for a while, been a bit under the weather with a cold and change of meds. It’s amazing when you’ve got a terminal diagnosis how you can get anxious about the slightest change in your body. So am I wearing glasses now because I have a brain tumour, or because I’m 50Continue reading “Social Community”
So this week started with my going to Andy Bouchers funeral who died from a similar cancer to mine, the picture below is how I will always remember Andy. The man I met up recently still had the same life in his eyes, but has body was racked with the pain of cancer. What surprisedContinue reading “Tough week”
All the way through high school in Stafford the back 4 of the football team more or less stayed the same. Me at left back the short one, playing off the wrong foot. The centre backs Stephen Wright and Andy Boucher, Steve will always be the tall lanky one , Andy the solid stopper. PatrickContinue reading “Bad start to the year, Better end to the week”
So I think it is fair to say that this was not part of my Christmas plans. Nice quiet one with Jen on Christmas Day Then down to Stafford for us all to do the first Bergin traditional Stafford Boxing Day since Mum died as one, symbolically this was the first year that one ofContinue reading “One last hospital visit 2021”
Today would have been Lewi’s 22nd Birthday he died two and half years of another form of Brain disease, we miss him everyday. The jewel of his mother heart, She will be perpetually broken. If you’re ever low or unsure what to do, find someone and ask Well it’s possibly because of a combination. AContinue reading “It’s the most troublesome time of the year”
So a while back i agreed to to feed 50 people for an evening for the brilliant Toft Tavs captains dinner Turns out whilst I’m still me I’m not the man I was. I struggled with organisation and if not for Jen doing lists for me and just generally being a pillar of calm andContinue reading “Mild panic attack”
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Lovely weekend with a gentle reminder
Sibling love
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I think it’s fair to say we’ve had a bit on since we last met up for pure leisure. Mum died, I got a diagnosis fro a Glioblastoma, that’s without the stresses of being a headteacher (Dom) a Snr social worker (Alexandra) under the present government, but it was Bergin family time
We had a lovely little place in Windermere and managed to coordinate the three arrivals from South London, Dunblane and Bollington, not so easy when one can’t drive it it was just great to be back together, we had the usual sibling issues as youngsters but never anything to big. We’ve been close working with each other living near each over in London. I can’t remember the last cross word that take more than 30mins to sort
The previous week, I’d had a good scan result nice little hole no progress and I went to to the weekend thinking about going skiing next year. Much to My wife’s frustration, just a decent weekend in the outdoors
It needs it for the lakes The views Dom
Great couple of days firstly walking round Grasmere I always like to that when I’m up as it was Lewi my late stepsons favourite walk, there is always something exciting about finding a lake at height even when you can’t see it
Lewi loved the lakes
The 2nd day we did Wasdale to trout beck and back to Ambleside, it’s wasn’t raining it was stair rods
Dom getting Arty I like a glade
So the idea was we got back and I cooked Sunday lunch , I didn’t feel weird but Dom said I had started to be a bit spaced. I went upstairs to get clean and start to cook tea
Before I know it Dominic and Alexandra are lifting me off the floor. I’ve enough experience now to know I’ve no idea what’s happened isn’t unusual. Also enough to to now that I was dry so it was not a deep fit. If you’re ill and male it’s important that occasionally you’re body isn’t in charge. I had a 2nd fit on the ct scan and the bed of wet clothes by your bed isn’t embarrassing it’s a result of your illness. You’ll be looked after
Guess that’s where I fell Another hole
Anyway a huge thanks to the hospital at Lancaster for looking after me
A huge thanks to the Lake District for reminding me that I’m not skiing again. That experience at 200m is somewhat different that 2800m
I can make a hell of what left of my life if I make the right adjustments, but I can’t pretend anymore that I can do both. I’m
I am lucky enough to have friends and family waiting and worries. For that compromise is important
Braintumourbergin 