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Getting back at it

Hello all, I’ve not written for a while, I’ve been a bit low as I often do around event days, like birthdays. I know that I should be happy that I’m still here but it is also a reminder , that with the family around you about what you will miss. This can often leadContinue reading “Getting back at it”

Getting back on track

It’s taken longer than before for me to recover from my last set of fits but I’m feeling I’m getting there, I’ve been out on my bike with Gareth and Anna who were gentle with me and it was great to get out. I’ve got a couple of bike events coming up. Penge CC whomContinue reading “Getting back on track”

Emotional week

So a full on week. Started with my eldest Joe and I visiting the Brain Tumour Research Centre of excellence at Queen Mary’s London Town. To place some plaques on the wall of hope. Now through you’re generosity we had 9 plaques to place. Each plaques representing £3000 that’s a days research. I chose toContinue reading “Emotional week”

Social Community

I haven’t blogged for a while, been a bit under the weather with a cold and change of meds. It’s amazing when you’ve got a terminal diagnosis how you can get anxious about the slightest change in your body. So am I wearing glasses now because I have a brain tumour, or because I’m 50Continue reading “Social Community”

Angry and sad

Hello all I’ve been doing my 10000 steps a day for brain tumour reseach and today everyone was full off sadness and anger https://m.facebook.com/nt/screen/?params=%7B%22fundraiser_campaign_id%22%3A322066129792805%7D&path=%2Ffundraiser%2F&_rdr Sadness because for the 2nd time in as many weeks we’ve lost another member of our community and yet again they were only 5, Nate follows Isla to beautiful children whoContinue reading “Angry and sad”

Tough week

So this week started with my going to Andy Bouchers funeral who died from a similar cancer to mine, the picture below is how I will always remember Andy. The man I met up recently still had the same life in his eyes, but has body was racked with the pain of cancer. What surprisedContinue reading “Tough week”

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Lovely weekend with a gentle reminder


Sibling love

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I think it’s fair to say we’ve had a bit on since we last met up for pure leisure. Mum died, I got a diagnosis fro a Glioblastoma, that’s without the stresses of being a headteacher (Dom) a Snr social worker (Alexandra) under the present government, but it was Bergin family time

We had a lovely little place in Windermere and managed to coordinate the three arrivals from South London, Dunblane and Bollington, not so easy when one can’t drive it it was just great to be back together, we had the usual sibling issues as youngsters but never anything to big. We’ve been close working with each other living near each over in London. I can’t remember the last cross word that take more than 30mins to sort

The previous week, I’d had a good scan result nice little hole no progress and I went to to the weekend thinking about going skiing next year. Much to My wife’s frustration, just a decent weekend in the outdoors

It needs it for the lakes
The views Dom

Great couple of days firstly walking round Grasmere I always like to that when I’m up as it was Lewi my late stepsons favourite walk, there is always something exciting about finding a lake at height even when you can’t see it

Lewi loved the lakes

The 2nd day we did Wasdale to trout beck and back to Ambleside, it’s wasn’t raining it was stair rods

Dom getting Arty
I like a glade

So the idea was we got back and I cooked Sunday lunch , I didn’t feel weird but Dom said I had started to be a bit spaced. I went upstairs to get clean and start to cook tea

Before I know it Dominic and Alexandra are lifting me off the floor. I’ve enough experience now to know I’ve no idea what’s happened isn’t unusual. Also enough to to now that I was dry so it was not a deep fit. If you’re ill and male it’s important that occasionally you’re body isn’t in charge. I had a 2nd fit on the ct scan and the bed of wet clothes by your bed isn’t embarrassing it’s a result of your illness. You’ll be looked after

Guess that’s where I fell
Another hole

Anyway a huge thanks to the hospital at Lancaster for looking after me

A huge thanks to the Lake District for reminding me that I’m not skiing again. That experience at 200m is somewhat different that 2800m

I can make a hell of what left of my life if I make the right adjustments, but I can’t pretend anymore that I can do both. I’m

I am lucky enough to have friends and family waiting and worries. For that compromise is important